It's impossible to describe the moment when you learn that your daughter is fighting for her life. 

 

Marian has a form of childhood Alzheimer's.

 

It's called Niemann-Pick Type C (NPC) and it's even worse than it sounds.

 

Marian's story is a tragedy, an inspiration and a source of hope.  

 

We believe that Marian is about to capture the hearts of a nation. 

 

We're launching #hopeformarian on August 14th, 2017.

 

We need your help spreading Marian's story.