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A 501(c)(3) medical research charitable foundation intent on advancing a cure and patient access to treatment for
Niemann Pick C

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HOPE FOR MARIAN

The blog we kept the first year after Marian's diagnosis, and less frequently thereafter but still trying, original subtitle:

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Sandy Beach

Featured Posts

Watch Me Mama

Oct 23, 2018

Watch Me Mama

One Year Forward

Apr 16, 2018

One Year Forward

Medical Journey to NPC Diagnosis

Jun 22, 2017

Medical Journey to NPC Diagnosis

Number Four

May 24, 2017

Number Four

Witnessing a Treatment - Your Daughter

Apr 11, 2017

Witnessing a Treatment - Your Daughter

Reading The Fine Print

Apr 5, 2017

Reading The Fine Print

May The Odds Be Ever In Your Favor

Mar 27, 2017

May The Odds Be Ever In Your Favor

Let's Stay In Touch!

The Two Year Mark

Sara McGlocklin

Mar 15, 2019
5 min

The Two Year Mark

This Saturday Marian and I are flying to Maryland to attend the Patient Focused Drug Development Meeting for Niemann-Pick Type C. I,...

Watch Me Mama

Sara McGlocklin

Oct 23, 2018
5 min

Watch Me Mama

We have some exciting developments! These months have been a whirlwind. We are seeing so many incredible things and Marian teetering on...

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