The blog we kept the first year after Marian's diagnosis, and less frequently thereafter but still trying, original subtitle:

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Watch Me Mama

One Year Forward

This Saturday Marian and I are flying to Maryland to attend the Patient Focused Drug Development Meeting for Niemann-Pick Type C. I,...

We have some exciting developments! These months have been a whirlwind. We are seeing so many incredible things and Marian teetering on...