The blog we kept the first year after Marian's diagnosis, and less frequently thereafter but still trying, original subtitle:

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Featured Posts

Watch Me Mama

One Year Forward

Medical Journey to NPC Diagnosis

Number Four

Witnessing a Treatment - Your Daughter

Reading The Fine Print

May The Odds Be Ever In Your Favor

Let's Stay In Touch!

The Two Year Mark

This Saturday Marian and I are flying to Maryland to attend the Patient Focused Drug Development Meeting for Niemann-Pick Type C. I,...

Watch Me Mama

We have some exciting developments! These months have been a whirlwind. We are seeing so many incredible things and Marian teetering on...

A 501(c)(3) medical research charitable foundation intent on advancing a cure and patient access to treatment for Niemann Pick C