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In the Media

Daily Kos 

A Terrible Disease, Children at Risk, and a Promising Treatment That's About to Vanish

Scary Mommy

My Daughter's Life Depends on a Drug that is Being Discontinued in 6 Months

CBS Minnesota

Toddler's Life Hangs in the Balance After 'Miracle Drug' Discontinued

Quad Cities

Local Mom Helps Launch Campaign for Life Saving Medicine

Fox 13 Now

FDA Denies Approval of Life Saving Medicine

Parents Fight Back as Company Discontinues Drug for Adrabetadex

ABC 15

Valley Boy Getting Stronger with Experimental Drug Treatments

Spectrum News 1

Family Urges Company to Keep Producing Life Saving Medicine

Spectrum News KY

Social Media Helps Crestwood Family Grow Through Embryo Donation - Embryo Donor's Daughter has Niemann-Pick
Type C


NBC Los Angeles

Experimental Treatment for Rare Children's Disease to be Discontinued 

Wall Street Journal

When Drug Development for Rare Disease Hit Setback, Parents Were Stung

More Hope for Marian News

July 29, 2019

Love What Matters

"As my daughter was giggling, bursting with love, in the next room I was learning..."


Read Our Story


August 19, 2018

HLN's Something's Killing Me

Season 2, "What's Wrong With The Twins."




December 06, 2017

The Doctors TV Show

Mom and Dad's race to save daughter from "Childhood Alzheimer's"


Watch the Two Clips


November 10, 2017

Hunt for the Cure: WIll This Girl Be The First to Survive "Childhood Alzheimer's"

The Daily Beast


Read The Article


November 07, 2017

Childhood Alzheimer's, What it is and How You Can Help

WVL-TV, Channel 8, Knoxville, TN


Watch and Read The Story


November 06, 2017

How-To Be the Best Caregiver to a Sick Child

Celebrate Women Today


Read The Article


November 02, 2017

Pedaling to Kick Cruel Disease (Riding for Marian)

The Ledger


Read The Article


October 30, 2017

Lemons and Cycling Could Help Save Toddlers' Life

Tampa Bay Channel 10 News


Watch The Story


October 25, 2017

Bike Ride for a Stranger! (Riding for Marian)

Great Day Tampa Bay, WTSP


Watch Here


October 24, 2017

‘Marian is doing really well, it’s like someone helped shine a light for her’: An update on the brave little girl defying the odds

Kindess and Hope Blog


Read The Update


October 15, 2017

Toddler Who Received Experimental Treatment In Chicago Doing Well

ABC Chicago


Watch and Read


September 15, 2017

Local Toddler Battling Rare Genetic Disease

CBS News Los Angeles


Watch and Read


August 10, 2017

Hope for families of children with 'Childhood Alzheimer's'

Daily Mail


Read It Here


July 23, 2017

​Family finds hope in treatment for fatal genetic disease

San Gabriel Valley Tribune


Read It Here


July 17, 2017

​Monrovia girl has rare genetic disease, NPC

Pasadena Star News Photography


See Here


July 11, 2017

​Monrovia toddler faces Childhood Alzheimer's disease

Monrovia Weekly


More Here


June 22, 2017

​Several French news, womens and parenting outlets are helping to spread awareness about NPC and Marian's journey

Marian and NPC covered across France


See One Here


June 20, 2017

​'It was devastating': Parents whose one-year-old daughter was diagnosed with 'childhood Alzheimer's' after she forgot [some of] her first words share their heart-wrenching battle

Daily Mail


Article Here


June 20, 2017

Marian was diagnosed with the condition in February and now her desperate parents are fundraising to cover the cost of clinical trials that could save her

The Sun


Read It Here


June 20, 2017

Toddler with childhood Alzheimer's has forgotten some of her first words as disease is set to rob her of memories

Daily Mirror


Story Here


June 20, 2017

​Adorable Marian McGlocklin, one, was diagnosed with childhood Alzheimer's in February this year

Australia's Leading Women's Network Shares Story


Link Here


June 06, 2017

How can I comfort my daughter if she doesn't know who I am?....

Woman Magazine Article


Article Here


May 09, 2017

"She will be the last to die."

Italy covers Hope for Marian


Read and Translate Here


April 24, 2017

California toddler being treated for "childhood Alzheimer's" in Chicago

ABC Chicago


Watch It Here


April 24, 2017

​Baby suffering from "childhood Alzheimer's"seeks treatment in Chicago

Fox Chicago


Watch It Here


April 14, 2017

Marian's Story Being Shared on Good Morning America and Yahoo News Websites

Good Morning America online and Yahoo News covering Marian's story


Read It Here


April 13, 2017

Toddler With 'Childhood Alzheimers' Symptoms Gets Experimental Treatment

ABC Network News


Read It Here


April 12, 2017

The article is in German but we google translated to read it

Huffington Post Germany


Read and Translate Here




April 13, 2017

​Real lemon aid! Girl, 4, sets up a lemonade stand to raise money for research into 'Childhood Alzheimer's' as her 19-month-old sister begins experimental treatment for the rare disease update


Article Here




April 10, 2017

Toddler With 'Childhood Alzheimer's' Begins Treatment at Chicago Hospital

CBS Chicago and  WBBM Chicago


Read It Here


April 10, 2017

This Is What It's Like to Raise a Baby With Childhood Alzheimer's



Read The Article




April 07, 2017

HEARTBREAKING: This Adorable 18-Month-Old is Suffering With Childhood...

Healthy Mummy Australia


Read the Article


April 07, 2017

One-year-old girl with childhood ALZHEIMER's in agonizing race against time to find cure before dementia takes hold

Daily Mail


Read the Article




April 09, 2017

Hope For Marian In Germany

The article is in German but we google translated to read it


Read and Translate Via Google Here




April 08, 2017

Toddler With Alzheimer In Race Against Time To Find Cure

New Zealand Herald


Read It Here




April 07, 2017

Local Family Is Raising Funds to Find Cure For 18-Month-Old Daughter With Childhood Alzheimer's

KFI AM 640


Read and Listen Here




April 06, 2017

This 18-Month-Old Girl Has "Childhood Alzheimer's" And Needs Your Help

Good Housekeeping


Read the Article Here




April 07, 2017

​Family Is In a Race Against Time to Save Toddler From "Childhood Alzheimer's" 


Read It Here




April 04, 2017

The Heartbreaking Story of an 18 Month Old With Alzheimer's

Babble by Disney


Read The Article




April 07, 2017

​Mom Has Sense of Peace While Pregnant. Her World Is Rocked When...

Independent Journal Review


Read It Here




April 05, 2017

​This Baby Girl Has Alzheimer's...And Parents Who Refuse To Give Up


See It Here




April 01, 2017

Family Raising Funds to Find a Cure for 18-Month-Old Daughter Diagnosed With Childhood Alzheimer's

ABC Los Angeles

Read and Watch The Story




March 28, 2017

18-Month-Old Marian Fighting For Hope Against Niemann-Pick Type C

Global Genes 


Read The Blog




April 03, 2017

Provide Hope For Marian: How You Can Save This Little Girl's Life

Kindness and Hope


Read The Article

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