We have a blog...and some hope
Well, I must admit, I always kind of wanted a blog, but I never really had anything to say. Not to be confused with not having opinions - which I certainly have no shortage of. I always preferred to live my life privately. Now, unfortunately, I do have something to publicly say, which is this: we need to save our daughter's life. She is 18 months old. And it is freaking stressful. A couple days before Marian's Niemann-Pick Type C diagnosis there was this massive double rainbo