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Jase, age 1 


Jase loves his bubba, riding the ranger, throwing balls, and playing with trucks or tractors. He also loves going outside and the swing! He is really attached to his mommy, too! 

Jase is 19 months old. At birth the pediatrician noticed his direct bilirubin levels were high, follow up ultrasounds showed his spleen and liver were enlarged. At only 3 months old, Jase was diagnosed with fatal NPC. Today Jase is doing well and he is working hard. He is behind on some motor skills but moving forward and does three different therapies twice a week, speech, physical and occupational to help him stay strong. 

Follow Jase's journey

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