HOPE FOR MARIAN

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Sandy Beach

July 29, 2017

Marian is the youngest patient in the world that we know of to be receiving this treatment via IT (spinal fluid). Another title holder is our friend Parker who is only six months old and just started it but through an IV to target his liver. Spain allows compassionate...

June 8, 2017

Well, it happened. I cried in public. The worst. I last cried in public seven years ago and still cringe when I think of it. Albeit that time, it was at work, in open court, in a two month sex abuse trial, the judge called me over when I started crying and as I walked...

May 24, 2017

Two of my best friends from law school traveled to Chicago with Marian and I this time. I didn't realize how much I was missing and needed time with them until we were all together. Kim, Diana and I have been a trio of friends for over ten years now. We used to all liv...

March 19, 2017

When I was little my best friend Ashley and I used the same after school babysitter. In second and third grade we would wait in the elementary school circle driveway waiting for her to come get us. Sometimes she would be late. I would turn to Ashley and nervously ask,...

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