HOPE FOR MARIAN

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Sandy Beach

July 29, 2017

Marian is the youngest patient in the world that we know of to be receiving this treatment via IT (spinal fluid). Another title holder is our friend Parker who is only six months old and just started it but through an IV to target his liver. Spain allows compassionate...

May 24, 2017

 These two have been friends since birth and are two of four members of our "baby play group" (comprised of four four year olds, four baby siblings, and four incredible, life saving, moms). Paul took Emily to the Santa Monica Pier and Aquarium Sunday for a birthday par...

Please reload

Recent Posts

March 15, 2019

October 23, 2018

April 16, 2018

Please reload

Please reload

Tags

Please reload