Sandy Beach

April 16, 2018

On our way to Chicago for her 12 month assessment.

When I was little I was pretty sure I’d be on tv one day. My cousin Gina and I used to watch Adventures in Babysitting on the VCR and rewind the opening montage over and over again, jumping from the couch to the carpet,...

July 29, 2017

Marian is the youngest patient in the world that we know of to be receiving this treatment via IT (spinal fluid). Another title holder is our friend Parker who is only six months old and just started it but through an IV to target his liver. Spain allows compassionate...

June 8, 2017

Well, it happened. I cried in public. The worst. I last cried in public seven years ago and still cringe when I think of it. Albeit that time, it was at work, in open court, in a two month sex abuse trial, the judge called me over when I started crying and as I walked...

May 24, 2017

Two of my best friends from law school traveled to Chicago with Marian and I this time. I didn't realize how much I was missing and needed time with them until we were all together. Kim, Diana and I have been a trio of friends for over ten years now. We used to all liv...

April 16, 2017

Here are some things we've learned this week:

1. Contrary to what I always believed, it is possible for a stomach bug to last for seven days. And it is the pits. Seriously.

2. I love tv but I don't ever want to watch The Amazing Race episode where they pick the teams tha...

March 19, 2017

When I was little my best friend Ashley and I used the same after school babysitter. In second and third grade we would wait in the elementary school circle driveway waiting for her to come get us. Sometimes she would be late. I would turn to Ashley and nervously ask,...

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