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©2017 by Hope For Marian, Los Angeles, CA

HOPE FOR MARIAN

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Sandy Beach

March 27, 2017

Some adorable and dearly loved friends, not from The Hunger Games.

The title of this post is from The Hunger Games, I read all three books and saw three of the four movies. You have to draw the line somewhere and I just could not see the last movie. Phillip Seymour Hoff...

March 23, 2017

These are our beautiful girls who have our hearts and so much love for each other, too. Marian giggled her way through the day and is fighting for her health and this life with every ounce she has. The photo shoot wasn't all roses - but looking at these pictures you co...

March 22, 2017

Shoots & Giggles Photography

Yesterday and today were two very different days. Both put us face to face with both the grim reality of the NPC diagnosis and also the exceptional people that NPC has brought into our lives, and those that were already there. The two days w...

March 19, 2017

When I was little my best friend Ashley and I used the same after school babysitter. In second and third grade we would wait in the elementary school circle driveway waiting for her to come get us. Sometimes she would be late. I would turn to Ashley and nervously ask,...

March 19, 2017

Yesterday we got some great news. Marian has an appointment April 7 with an NPC expert in Chicago who has accepted her as a patient, given her a rush appointment, AND can begin administering the treatment if it's not ready in California yet. Our local hospital is hard...

March 17, 2017

Emily and Marian, ages 3 and 6 months


All I ever wanted was to be a mom. When I was little, when people asked how many kids I wanted, my answer 13. Naturally, mostly girls. I had names picked out and probably took pretend play a step too far pretending my dolls were my...

March 17, 2017

Well, I must admit, I always kind of wanted a blog, but I never really had anything to say. Not to be confused with not having opinions - which I certainly have no shortage of. I always preferred to live my life privately. Now, unfortunately, I do have something to pub...

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