Sara McGlocklin
Six Months and Counting
It's been just over six months since we got the diagnosis, and almost six month since Marian started treatment. This time last year, almost exactly, I was in shock knowing Marian may and likely has a fatal genetic disorder. I was carrying her around everywhere because she couldn't stand. I was so afraid. I sent a lot of emails. When we got the diagnosis, I felt filled with fear of what the next six months would bring, would it only be getting harder, sadder, more heartbreakin