Sara McGlocklinJul 29, 20174 minTo 400 And Back AgainMarian is the youngest patient in the world that we know of to be receiving this treatment via IT (spinal fluid). Another title holder is...
Sara McGlocklinJul 18, 20171 minHearing CheckMarian has ultra high frequency hearing loss. We sat in the little room together for the hearing test. Not to brag but I could hear all...
Sara McGlocklinJul 14, 20173 minLife on the LineI sometimes would sit at night looking at charts for NPC. There's a white line for pre-neurological symptoms, a grey line for...