The blog we kept the first year after Marian's diagnosis, and less frequently thereafter but still trying, original subtitle:

A MOM'S JOURNEY TO FIGHT FOR HER DAUGHTER'S LIFE...AND SOME

EVERY DAY STUFF TOO

Let's Stay In Touch!

Sara McGlocklin

Weekend Snapshots

"More More More More" is the theme of the last couple weeks for Marian, she signs more over and over and says, "moe" and then swipes her...

Sara McGlocklin

What (Not) To Say

My daughter is dying. Maybe. She has a fatal and progressive genetic condition. She is one and a half years old. There is hope for her...

Sara McGlocklin

Number Four

Two of my best friends from law school traveled to Chicago with Marian and I this time. I didn't realize how much I was missing and...

Sara McGlocklin

Carousel With Friends

These two have been friends since birth and are two of four members of our "baby play group" (comprised of four four year olds, four baby...

Sara McGlocklin

Prima Ballerinas

This weekend Emily danced her heart out in two dance recitals. The first was at her nursery school, on stage her best friend at school...

Sara McGlocklin

Good Things

Marian is doing so well. Emotionally it's little unsettling in a bizarre way though. For all the small achievements or changes she is...

Sara McGlocklin

The Second Treatment

I wrote an entire blog post about our second treatment and I did not save it. Oh well! Here are some pictures that tell the story of our...

Sara McGlocklin

Scary Coughs

Last night was a rare occurrence, I was the last one awake. Which is particularly surprising since two nights ago I fell asleep lying on...

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